Marketing Department Report

2023-2024

Our team

"We are closer to our goal of becoming more equitable across our three pillars of care, consciousness and cure."

- Kristophe Diaz, PhD

Executive Director and Chief Science Officer

21% Communications

& Awareness

33% Research

26% Outreach & Education

12% Management & General

8% Fundraising

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Contents

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Message from

THE EXECUTIVE DIRECTOR

It has been a privilege to be part of CurePSP and work alongside a dedicated team, supporting board members and many empowering volunteers across the country. I’m looking forward to making a difference in the coming years and putting actions toward this commitment: to be a catalyst for a cure.

I joined CurePSP in January 2020 and assumed its leadership in July 2021 in the middle of a world pandemic with many uncertainties and impossible questions. At CurePSP, we couldn’t let this obstacle prevent us from advancing the programs and services core to our mission, especially when the families we support had to isolate even more.

These complicated times gave our team and Board of Directors no choice: we had to adapt, prioritize continuity of our services and, most importantly, innovate quickly. And we did just that with the help of our community of patients, caregivers, volunteers and healthcare professionals.

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06

For example, we were able to maintain our support groups by fully transitioning to virtual meetings, allowing people to receive the benefit of these conversations in the comfort of their home. Also, we remained responsive to our community requests and added several regional and thematic support groups to our offerings.

As you review this annual report, I take note of the following key accomplishments:

• We updated our strategy and our guiding principles. The core message is that we are focusing on being a catalyst for a cure. This means we prioritize scientific advances that have a chance to progress to the clinic, and we build powerful partnerships with critical stakeholders. As an example, we’ve strengthened our collaboration and funding partnership with the Rainwater Charitable Foundation to work together on the development of biomarkers and new therapeutics for tau-based diseases (which include PSP and CBD, and could also have positive outcomes for CTE, Alzheimer’s disease and other tauopathies).
  
• We refocused our research grants. Pipeline and Pathway grants are now our main science funding vehicles. They aim to continue supporting novel ideas and knowledge (there is still so much we don’t know on the biology at the base of neurodegeneration) and support promising projects in the development of new treatments and new biomarkers.
  
• We reset and expanded our CurePSP Centers of Care program. We now have a network of 28 centers in the United States and two in Canada. All are driven to learn from each other and collaborate to tackle difficult but important unmet needs — for example to provide timely information when a family experiences new symptoms or a new challenge.
  
• We launched a new grant, called the CARES grant to further incentivize Centers of Care to work together on what will help patients and families NOW.
  
• Since July 2021, we added six full-time employees to our team. This growth is a critical step toward accelerating our mission. I promise you that the programs and partnerships we’ll establish in the coming years will speak to the success of these additional resources.
  

As we now prepare to plan for 2024 and 2025, I’d like to reiterate that patients and their families always guide our priorities. And the priorities are clear: in the short term, families should have access to better care faster; in the long term, we need to make sure more clinical trials are available to our families and that industry invests more in solving neurodegeneration. These responsibilities drive my work and the work of CurePSP’s team. We are proud of the work we do, and we are impatient to do more and to make a difference in the lives of those living with PSP, CBD and MSA.

Thank you,

Kristophe Diaz, PhD

Executive Director & Chief Science Officer

CurePSP

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(With comparative totals at June 30, 2021 and 2022)

Assets

6/30/22

6/30/21

Cash and cash equivalents

Investments

Pledges receivable

Prepaid expenses and other assets

Inventory

Security deposit

Fixed assets, net

Investments held for endowment

Total assets

Liabilities and Net Assets

Liabilities:

Accounts payable and accrued expenses

Deferred revenue

Grants payable

Total liabilities

Net assets:

Without donor restrictions

With donor restrictions

Total net assets

Total liabilities and net assets

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(With comparative totals at June 30, 2021 and 2022)

Without

Donor

Restriction

With

Donor

Restriction

Total

6/30/22

Total

6/30/21

Public support and revenue:

Contributions

Fundraising event income

Investment return

Government grant Paycheck Protection Program

Other revenue

Net assets released from restriction

Total public support and revenue

Expenses:

Program services

Supporting services:

Management and general

Fundraising

Total supporting services

Total expenses

Change in net assets

Net assets beginning of year

Net assets end of year

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IMPACT REPORT

2,000 mailed educational resource packets to people in all 50 U.S. states and 10 other countries

Over 1,000 hours with community members answering questions about PSP, CBD and MSA and offering support and connection to resources

310 brain donations through the CurePSP Brain Donation Assistance Program

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29,000

Total Number of Gifts

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MOMENTUM AND UPDATES IN RESEARCH

Thanks to the generosity of families living with or caring for someone with PSP, CBD or MSA, we’ve been able to invest more than $20 million in scientific research.

We have helped establish a strong knowledge base and a productive network of scientists and medical professionals. Looking to the future, we are establishing new programs, strategies and partnerships to be a catalyst for a cure. The next page showcases the last 12 programs we funded, representing $1.2 million gifts from more than 4,000 donors who decided to support research.

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$20,000,000

completed Research

funding from 1997 to present.

26 years of research dedicated to understanding PSP and CBD

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#becausehopematters

2020

-2022

DONOR LISTING

CurePSP extends its sincere appreciation to our supporters for their unwavering commitment to our mission of raising awareness, building community, improving care and finding a cure for PSP, CBD and MSA. Their dedication and contributions have been instrumental in driving our efforts forward, and we are deeply grateful for their support. We look forward to continuing to work together toward our common goal.

$100K and Above

Anonymous

Anonymous

Benevity

Ms. Catherine Boltz

Caroline R. Brown Living Trust

The Edward C. & Edith B. Parker Charitable Fund

The Estate of Diane and Tom Kowaleski

The Estate of Donald Heenan

The Estate of Patricia Carroll Lee

Fred and Mabel R. Parks Foundation

Mr. Paul H. Freeman

Light of Day Foundation, Inc.

Peebler PSP Research Foundation, Inc.

Mr. & Mrs. Frank Semcer Sr.

$50K to $99,999

The Dayton Foundation

Mrs. Patricia Dent

Eli Lilly & Company

The Estate of Patricia Saint

Mr. William H. Herrman

Lyndon Selter Parker Trust

MICRO, Inc.

Mr. & Mrs. Jack Phillips

Nancy Stagliano PhD

$25K to $49,999

331 Roses Trust

Mr. Richard Botzler

Mrs. Linda Caplan

Ms. Brenda D. Carnes

Clavier Family Donor Advised Fund

Mr. Everett Cook

Dianne H. Ruthman Family Foundation

Mr. Mike Dixon

Drs. Jeff & Jennifer Friedman

Mr. & Mrs. James A. Kirk

The Lapin Foundation

Mr. Thomas Loewald

Mr. Stephen Peet

$10K to $24,999

Ms. Clare Abbey

Mrs. Kathryn Aiken

Mr. Klaus Althammer

Ms. Lisa Bader

Mr. Gary D. Blomstrom

Ms. Amy Branch

Mr. Michael Brown

Burt Harkins Family Foundation

Mr. Stephen Canter

Carmen & Victoria Deyesu Family

Foundation

Mrs. Mary Ann Casey

CHMC Anesthesia Foundation, Inc.

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Chris & Melody Malachowsky

Family Foundation

Ms. Helen W. B. Cook

Ms. Rosalie C. Crenca

Mr. Mike de Graffenried

The DECK Foundation

Mr. William M. Drummy Jr.

Karl Easterly

Edward W. Smith Jr. Foundation

The Estate of Denise Taylor

Ms. Kathy Ferrell

Mr. Russell P. Golly

Ms. Barbara Granger

Mr. George L. Grice

Ms. Marilyn Hardeman

Mark Hill

James B. Luke Family Charitable

Foundation

Amish & Sapna Jani

Jasperson Family Foundation

Ms. Jane Jensen

Mr. Steven C. Johnson

The Joseph Bogetich Family

Fund

Kathryn J. Dinardo Fund

Keewaydin Investments, LLC

Mr. Jeffrey F. Kelly

Owen & Marti Kenworthy

Mrs. Erin Korves

Ms. Betsy J. Lancaster

Mr. Lawrence D. Levien

The Leviton Foundation, Inc.

Ms. Margaret H. Mathews

Mr. Wilson McElhinny

Ms. Mary T. Meagher

Mollie Zweig Foundation

Mrs. Karen S. Morris

The Nathan P. Jacobs

Foundation

The Navesink Foundation

Network For Good

Mr. Russell A. Nippert

Nixon Family Foundation

Mr. Allen Nixon

Mr. John O'Connor

Mr. Joseph C. Oppenlander

Ms. Virginia Pape

Don & Cynthia Peitz

Mr. Michael Pisha

Mr. Ronald Powell

Ms. Karen W. Rainwater

Mr. Brent T. Rider

Mr. Peter Scales

Mr. George B. Seifried

Ms. Hema Shah

Ms. Ann Silva

Mrs. Diane Singer

Mr. John Snyder

Mr. & Mrs. Chester B. Speed

Stephen & Ann Jasperson Charitable Fund

Mr. Jeffrey A. Tabak

UCB Limited

Mrs. Lesley J. Undercofler

Mr. John (Jack) R. Voigt

Meridith Weiderman

Mr. Steve Wilson

Mr. Erwin Zeuschner

$5K to $9,999

Ms. Lisa Alumkal

Ansin Foundation

Aprinoia

Ms. Susan Ashlock

Ms. Amber Barnes

Benjamin & Seema Pulier Charitable Foundation

Mrs. Josephine F. Bjornson

Charles & Joyce Bongers

Bright Funds Foundation

Jerus J. Campbell, JD

Ms. Susan Carmel

Ceres Foundation

Ms. Cheri R. Cernak

Charities Aid Foundation of

America

The Charles E. & Edna T. Brundage

Foundation

Mr. Henry G. Cisneros

Clarfeld Financial Advisors, Inc.

The Conestoga Road Foundation

Mort & Linda Creech

Cybergrants

D&M Surveyors PC Employees

Ms. Stephanie Devaney

Mrs. Ann H. Dunwody

Mr. Peter Eastman

The Eleanor Upton Charitable

Foundation

Engel Family Fund

Mr. Robert Farrell

Ms. Dale Ferris

Frontstream

Mr. William George

Ms. Carol A. Gibson-Prugh

Mr. Brett Gillis

Ms. Elizabeth Gilmore

Mr. John Golden

Mark & Kathryn Heerema

Mrs. Doryce L. Hills-Wells

Mr. John Hoek

Mrs. Jane Holbrook

Ms. Susan Horsburgh

JF Maddox Foundation

Mr. John G. Johnson Jr.

Mr. Zivorad Jovanovic

Mrs. Susan Kane

Mr. James A. Katsanis

Mr. Thomas Kempner

Mrs. Regine Krieger Freeman

Mr. Andrew M. Kriegman

Ms. Linda Lane

Mr. Leroy C. Leidal

Mrs. Doris A. Lewis

Sanford & Leslie R. Lindenbaum

Ms. Pamela Lobenhofer

Mario & Alma Pastega Family

Foundation

Kerry McLaughlin

Mr. David McNaughton

Kevin & Laura Meehan

Mr. Gary F. Merritt

Ms. Lisa Meyerer

Mrs. Janice Mitchell

Dr. Michael Naumann

Nicholas H. & Margaret H. Carlozzi

Charitable Foundation

The Orien Levy Woolf & Dr. Jack

Woolf Charitable Foundation

Mrs. Jane Peerenboom

Pledgeling Foundation

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Ms. Vidya Rajagopalan & Mr.

Sribalan Santhanam

Mr. Edwin Rigsbee

Mr. Terence P. Roche

Gary L. Rose

Mr. Stanley Rubin

Saint Paul & Minnesota Foundation

Ms. Charlene Sampson

Ms. Marilyn Sandorf

Mr. Sachin Shah

Mr. Justin Shea

The Small Change

Mr. Douglas R. Smith

Mr. & Mrs. John Sprague

Mrs. Susan Steinberger

Ms. Brittany Stobbe

Mr. Greg Stobbe

Synchrony Corporate

Ms. Diane Taylor

Ms. Rebecca Truelove

Mr. Michael A. Twellman

Ms. Jill Varga

Mr. John O'Sullivan

Mr. Eric S. Wesolek

Mr. Brent Yarger

Mr. Brian Yocum

Ms. Nancy Yu

$1K to $4,999

AbbVie, Inc. Employee Giving

Campaign

Ms. AnaLisa Acosta

Mr. Ryan Adair

Mrs. Emily Albrecht

Mr. Alan Altman

Drs. Marc & Sharon Amaya

America's Charities

American Express Foundation

Mr. Steve Amicone

Mr. Craig Anderson

Mr. Dennis Anderson

Mrs. Eliza Anderson

Mr. & Mrs. John & Linda Anderson

Ms. Patricia Anderson

Ms. Janis Appel

Mr. & Mrs. Craig Apregan

Mr. Christopher J. Armstrong

Mrs. Emee Armstrong

Mr. Frederic Arnoux

Rabbi Melanie Aron & Mr. Marc Aron

Mrs. Delysia R. Ashwood McNair

Associated General Contractors of

Virginia, Inc.

Mrs. Tamara Avalos

Mr. Robert E. Baensch

Baird & Warner

Ms. Nancy Baker

Mr. Paul Ballam

Bank of America - Cybergrants

Bank of America Foundation, Inc.

Banner Team, LLC

Mr. Frederic Barnes

Dr. Bruce A. Barnett

Mr. James Barnette

Mrs. Deborah Barrett

Mr. & Mrs. Red And Diana Barrett

Mr. Victor Barrett

Ms. Carol Barry

Mrs. Louisa M. Barss

Mr. Douglas Bartner

Lawrence and Donna Barton

Ms. Lisa Bastolla

Avik Basu

James & Jacquie Batchelder

Mr. Mark Beadle

Mr. Gary Beck

Mr. William W. Bednarczyk

Mary Jane And John Belt

Dr. Burton Benjamin

Mr. Robert M. Bennett

Mrs. Miriam G. Bernstein

Mrs. Denise Bevers

Mr. Kapil Bhandari

Mr. Frederick R. Bisch

Ms. Sarah Bisch

Dr. Stephen Bishop

Mrs. Bertha S. Blanchard

Mr. James Bligh

BMW3 WMG Fund

Mr. Scott Bochler & Mrs. Ann

Bochler

Ms. Jessica Bogie

Ms. Ruth Bolin

Ms. Ruth Bolin

Joseph Bonelli

Ms. Lois Bonelli

Bonita Bay Club, Inc.

Mrs. Sharon L. Bonsall

Dr. Yvette Bordelon and Dr. Carlos

Portera-Cailliau

Manav Botadra

Ms. Christine E. Boyle

Mrs. Sandy Boyle

Mr. Jack Bradford

Ms. Maroula Bratakos

Daniel & Mary Kathleen Brennan

Terry Brenzikofer

Ms. Virginia Brooks

Brown Advisory Charitable

Foundation

Mr. Evan Charles Brown Jr.

Ms. Ann T. Bruno

Ms. Rita A. Brust

Mrs. Doreen Bryant

Mrs. Laurie Buczek

Bruce & Janet Bunch

Mr. Robert Burke

Mr. Charles Burlingham Jr.

Glen & Jan Burmeister

Mr. George H. Buteau

Albert Caesar

Mrs. Mary K. Callaway

Mr. Kenneth V. Camarco

Cambrex Corporation

The Campbell Family Foundation

Mrs. Melissa Canitano

Ms. Christine Carbonel

Carey Cox Wyatt Charitable

Foundation

Mr. Frank Carillo

The Carris Corporate Foundation,

Inc.

Ms. Evelyn Carter

Mrs. Joanne Carter

Ms. Margaret M. Carter

Ms. Mary Casey

Dr. Othoniel Castro

Caterpillar Foundation Matching

Gift

Ms. Marabeth Causey

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Mrs. Sally Crompton

Ms. Linda Crook

Dr. Jo Ann T. Croom

Ms. Linda Csaplar

Mr. Will W. Csaplar Jr.

Ms. Chris Curle

Mr. Robert Cushman

Happy Daily

Dan and Merrie Boone Foundation

Mr. Azar Daruwalla

Mr. Rick Daswani

MSgt Terry D. Davenport Sr.

Teresa, Randy & Katie Davis

Ms. Emma de Waal

Mrs. Diane Deaver

Mr. Douglas R. Deaver

Mr. Christiaan DeBrauw

Ms. Vicki DeCourley

Dell, Inc.

Mr. John Della Volpe

Ms. Marian DeLong

Mr. John M. Derrick Jr.

Mr. Palak Desai

Mr. Patrick Dessart

Ms. Barbara Devereux

Mr. Alec H. Diacou

Mr. R. Peel Dillard

Mr. Walter V. Discenza

Mr. Andrew Dobda

Ms. Christine Dobson

Mr. & Mrs. Douglas A. Donahue

Mr. Forrest Dowling

Mr. J Patrick Dreyer

Ms. Dana Duncan

Mr. Michael Dweck

Mrs. Sharon Eastridge

Mrs. Jamie Eckert

Ms. Elizabeth Edelman

Ms. Janet M. Edmunson

Edward H. Andrews Foundation

Edward H. Benenson Foundation, Inc.

Mr. James D. Egan

Ms. Kathleen Eggers

Ms. Connie Eichenauer

Mr. Edward C. Elliott

Mr. Robert Elsaesser

Mr. David England

Mr. William Enos

Mr. Will Ezelle

Ms. Cynthia R. Cernak

Mrs. Sangeeta Chadaga

Ms. Emma Chaiken

Mr. Paul Chaiken

Douglas & Susan Chance

Mr. Anthony Chandler

Vijaya Chandrakant MD

Ms. Cynthia Chang

Hsi-Tien Chang

Ms. Susan Chanin

Ms. Ellen Chao

Charityvest, Inc.

Dr. Philip Choi

Garrett Christian

Gerry & Phyllis Church

Ms. Catherine Cicci

Mr. Peter Ciccotto

Ms. Mary Ann Cicero

Mary Ciullo

Mr. Barry Clark

Mrs. Sally Clark

Ms. Sharon Clevesy

CNA Corporate

Ms. Judy Cobb

Mr. Craig Coffey

Mr. Alan G. Cohen

Dr. Jack B. Cohen

Mrs. Kim Cohn

Arthur & Donna Coia

Mrs. Patricia Cole

Mr. & Mrs. Robert A. Cole

Mr. Timothy A. Cole

Mr. John Collins

Mrs. Margaret L. Collins

Mrs. Mary F. Connolly

Conover Foundation, Inc.

Mrs. Mary Conover

Mr. Erik Constantino

Phyllis Contino

Mr. George T. Cook

Christine & Thomas Corser

Ms. Donna Corsetti

Mrs. Julianne Corsetti

Mr. Peter Cosentino

Ms. Carol Cosmos

Mrs. Joy Courtright

Mr. John Coyle

Edward Crandell

Ms. Diane Crompton

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Mrs. Angie Fahrenthold

Ms. Hoan Faria

Mrs. Debbie Farley

Mr. & Mrs. Joseph L. Farris II

Ms. Joyce Farro

Dr. Melanie J. Fatone

FDG Inc.

Mr. Arthur Feidler

Mr. Dan Fein

Mr. Marc Feldman

Mrs. Mary Fenkel

Mr. & Mrs. John Fette

Dr. Stephen Field

Mr. & Mrs. Jerry Finney

First Baptist Church Creedmoor

Dr. Jori Fleisher

Mrs. Karen Fletcher

Mrs. Ana C. Flood

Mrs. Anne M. Flood

Florance Lupkes Estate

Mrs. Esther M. Floyd

Mr. Steven Flynn

Ms. Helen H. Ford

Mr. Kevin Foster

Mr. Robert Foster

Ms. Emma Foust

Mrs. Jean Fox

Mr. Charles M. Free Jr.

Mr. F. Don Freeman

Susan Tax Freeman

Mr. Carl H. Friedemann

Eric & Lori Friedman

Mr. Michael Friedman

Friend of CurePSP

Mr. Earl Fugett

Mr. Nish Gajarawala

Mr. Joshua Galecki

Mr. & Mrs. Robert Gallois

Mr. Ronald M. Gambino

Dr. Anne Gant

Mrs. Rachel Garber

Ms. Frances A. Gard

Ms. Courtney Garvey

Mrs. Lisa Garvey

James & Debra Gawne

Mrs. Nancy Gehlbach

General Mills Financial Shared

Services

Mrs. Karen S. George

Mr. Ryan George

Mrs. Cheryl Gholson

Mr. Walter B. Gibson

Ms. Christine Gill

Mr. Robert Gilman

Mr. William Gipson

Dr. Allan J. Glazer

Mr. Steve Godino

Mr. James G. Goggins

Goldman Sachs & Co. Matching

Gift Program

Mrs. Pamela T. Gomes

Mr. Armando Gomez

Ms. Linda Gonot

Miss Stephanie Gonot

Ms. Lorna A. Goodrich

Mr. Christoffer Graae

Philip Gratz

Mrs. Joyce Green

Mrs. Amy Greenbaum

Ms. Norma J. Greenberg

Ms. Vikki L. Greenleaf

Greg & Nikki Price Charitable Trust

Mr. Steven Griffin

Ms. Gayle Griffith

Mrs. Susan Grillo

Dr. Josephine Grima

Ms. Karen L. Grossman

Mr. Andre L. Guilbert

Ms. Helen C. Guilfoyle

Mrs. Carol E. Guist

Gulf Winds Track Club, Inc.

Mrs. Diane Gulyas

H. Don & Kathryn Gill Charitable

Foundation

Mrs. Ronnie Haber

Mrs. Jane Hadley

Mr. Peter W. Halbert

Mr. Robert Halliday

Mrs. Denise Hamilton

Mr. Everett Hamilton

Mr. Hank D. Hankins

Mr. Timothy B. Hanley

Mrs. Rhonda Haran

Mr. Jay Hardwick

Ms. Jean Ann Harper

Ms. Carolyn M. Hartmann

Mrs. Nancy G. Harvey

Mrs. Mellisa Hastings

Mr. Richard J. Hausman

Mr. & Mrs. Craig Hays

John & Sarah Hebda

Mrs. Sandra Hechler

John & Mary Heilner

Ms. Karen Heldmeyer

Dr. Lisa Henderson PT

Ms. Lisa Henderson

Ms. Marilyn Henige

Mrs. Mary J. Hennen

Mr. William Herrmann

Mr. Hal Hicks

Mrs. Anne Higgins

Ms. Maura Elisabeth Higgins

Ms. Alexandra Hill

Ms. Rebecca Hill

Hilliard Lyons Trust Company, LLC

Mr. Derek Ho

Ms. Hoffman

Ms. Brenna Hohl

Dr. Carlton T. Holte

Mrs. Joyce Homan

Howard B. Homonoff

Mrs. Victoria H. Hornstein

Mr. Mark Houk

Ms. Renee Hughes

Ms. Susan Hyre

IBM Employee Services Center

Ms. Rosalie Ingenito

Insurance Auto Auctions

Mr. Hari Iyer

Ms. Catherine Jablonsky

Reid & Amanda Jackson

Mr. Raymond James

James Oaks Charitable Fund

Dr. Kathryn M. Jason

Joan and Wade Webster Leveraging Philanthropy Fund

The Johnson Family Fund

Joe Johnson

Mrs. Ruth Johnson

Mr. Ryan Johnson

Mr. Allan Jones

Mrs. Claire Jones

Mr. Joseph Jones

Mr. Max Jones

JP Morgan Chase Foundation Matching Gift Programs

JPMorgan Charitable Giving Fund

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Ms. Jennifer Karinen

Senator Nancy Landon Kassebaum

Ms. Nancy A. Keller

Ms. Lauren Kelly

Ms. Karen Kerns

The Kevin & Elizabeth Dill Foundation

Mrs. Karen Kinzle Zegel

Mr. James Kipp

Mr. Rex Kirshner

Klehr Harrison Harvey Branzburg LLP

Mr. & Mrs. David C. Kleinschmidt

Dave and Lori Kleschold

Ms. Lin Koenig

Mrs. Jill Kolles

Ms. Dawn Kordenbrock

Mr. Alan Kraus

Ms. Norma Krayem

Austin & Beverly Kreeger

Mr. John C. Kreuser

Mr. Jags Krishnamurthy

Mr. Venkatachala Krishnan

Mr. Mike Krolak

Mr. Armin A. Krueger

Mr. Richard Krueger

Mr. Sheelendra Kulkarni

Mr. Michael Kwiatkowski

Ms. Nancy LaCroix

Mr. Stephen A. Laipply

The Lake Family Fund

Ms. Annette L. Landesman

Mrs. Bonnie LaRose

Mrs. Karen Larsen

Mrs. Kathleen Last

Last Chair Brewery

Siufun Lau

Ms. Cynthia Leach

Bo Lee

Mr. Tom Lee

Mr. Melvyn L. Lefkowitz

Mr. Michael Lemle

Mr. Daniel Lempres

Mr. Don R. Lenzi

Mrs. Jean W. Lesser

Frayda Levin

Mr. Stewart Levy

Alex & Cheryl Lewis

Mrs. Rachelle Lindo

Ms. Teresa Lindsey

Ms. Cheryl Lippert

Mr. Bryce Little

Mr. Aadil Lokhandwala

Mrs. Olga Longoria

Mr. Clarence Loomis

Mr. Jerry LoPorto

Mrs. Carol Loughlin

Mr. Samuel D. Loughlin

Mr. David Loveys

Mr. Allan Lowe

Mrs. Hazel Luckey

Ms. Patricia Lui

Mr. Peter A. Lund

Lundbeck, LLC

Lyn Stacie Getz Foundation, Inc.

Dr. Alba Macias

Mr. A. Andrew MacQueen

Mr. Chris MacRitchie & Ms. Jennifer

R. MacRitchie

Ms. Susan Magovern

Triona Mahon

Dr. & Mrs. Peter Maki

Mr. James E. Mann

Iqbal and Nasima R. Mansur

Mr. Jose Maritorena

Ms. Barbara Markham

Mr. Michael J. Marotta

Mr. Theodore Martens

Ms. Natalie Martin

Ms. Catherine Maruska

Dr. Thornton B. Mason & Dr. Ingrid

Warmuth

Mrs. Marlene Massa

Ms. Kathleen Matushak

Mrs. Pamela Matyas

Mr. & Mrs. Andrew Maus

David McCann

McCarthy Redland Family

Foundation

Mr. James McClellan CPA/PFS

Mr. David R. McClelland

Ms. Cheri B. McCrummen

Mr. William R. McFarland

Mr. Joseph McGarry

Mr. John McKeon

Mr. & Mrs. Philip McLellan

Dr. & Mrs. Matthew A. McMahon

Paul and Babs McNulty

Mr. & Mrs. David And Tricia

Meadows

The Meagher and Hoek Family

Foundation

MEB, Inc.

Mr. Saurin Mehta

Ms. Margaret J. Menoch

Dr. Faisal Merchant

Ms. Ruth M. Meyer

Michael B. Wood Foundation

Mrs. Cynthia A. Miles

Mr. David L. Miller

Mr. Doug Miller

Mrs. Miriam L. Mills

Mrs. Kelly J. Minehart

Mr. Henry Minello

Gary & Diane Mohr

Ms. Nancy Montgomery

James & Christine Mooney

Dr. Bruce H. Morimoto

Joseph & Krys Mortellaro

Ms. Donna J. Muck

Mr. Gene Mueller

Mrs. Carla Mullins

Mrs. Barbara Murray

Catherine Murray

Mrs. Teann Nash

Mr. Matthew Nastuk

Mr. Andrew Naumann

Dr. Raymond Naumann

Mrs. Marjorie G. Neuwirth

New York Life Insurance

Mr. Nicholas Newburger

Mr. Peter Newell

Guillermo Nicolas

Mr. Gary Nielsen

Frank & Sally Nobles

Mary Helen L. Norris

Shama Novey

O'Connor Family Fund

Peter & Debra O'Connor

Mr. Edward J. O'Donnell Jr.

Mrs. Priscilla M. O'Rear

Mr. James Oakes

Ms. Marie Odon

Nicholas & Anne Ogan

Ms. Donna Oker

Mrs. June Olson

Michaelon & Bob Olson

Mr. & Mrs. Stuart I. Oran

Sunish Oturkar

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Mr. Kyle Overcash

Mr. Rodney Overcash

Mr. Dale Oxe

PAC Match Corporate

Mr. & Mrs. George Palyca

Mr. Jason Pannone

Mr. Joseph R. Paolino Jr.

Col. David B. Park

Mr. Michael Park

Mr. David Parker

Ms. Margaret Parker

Mr. Niraj Patel

Pushpa Patel

Shonak Patel

Mrs. Kristin Patterson

Mrs. Anne Pearl

Mrs. Merry A. Pearson

Mr. John H. Peck

Mr. Franklyn Perez

Mr. Dosite S. Perkins

Mr. James Perkinson

Adam & Alison Perrault

Mr. Steve Pesner

Mrs. Carolyn Pettit

Mrs. Martha B. Phelps

Ms. Louise Phillips

Mr. Tyler Phillips

Anne Pierce

Pinteon Therapeutics

Pipes & Shaw LLC

Ms. Carole Pirozzi

Ms. Mari-Anne Pisarri

Ms. Jeanne Pittman

Playlist Productions, Inc.

Mr. Keith Polakoff

Political Action Committee

Dennis & Ann Marie Popovec

Portugal Day Newark

Nancy Prahl

Ms. Andi Pratt

Ms. Sharon J. Pratt

Premier, Inc. and Related Companies

Mr. Stephen Presser

Project Enhancement Corporation

Mr. Kevin Quan

Mr. Frank J. Quayle III

Mr. & Mrs. William E. Quinn Sr.

Ms. Sanna Raedeke

Mr. Sriram Rajagopalan & Ms. Bipasha

Mukherjee

Ashok Raju

Ralph A. Loveys Family Charitable

Foundation

Mr. Arun Ramasubrahmanyan

Ms. Lorraine Ramig SLP

Mr. Gerry Ranzal

Mrs. Gina Ray

Roger & Mary Kay Ream

Ms. Eileen Rearden Hewell

Ms. Alexis Regan

Ms. Sharon Reichardt Walker

Miss Karen Reinking

Mr. John F. Remondi

Ms. Margaret A. Renz

Mr. W. David Rhodes IV

Mr. David Rice

Mrs. Linda A. Rice

Ms. Lynn Richards

Ms. Robin Richardson

Mrs. Kathleen M. Ridenour

Ms. Elizabeth Riley

Wanda & Marty Rimestad

Dr. & Mrs. Martin & Wanda Rimestad, MD

Dr. William Rimmke

Mr. & Mrs. Jeffrey Ring

Mr. Douglas R. Ritter

Mr. Charles Rivetto

Mr. & Mrs. Donald Rizzo

Martha & Paul Rizzoli

Mr. Paul David Robbins

Joanna Roberson

Ms. Susan Roberts

Ms. Debbie Robinson

Mr. Norman Robnett

Rochester Area Foundation

Mr. & Mrs. David C. Rogers

Mrs. Sharon Rombeau

Ms. Lisa Rosar & Mr. Troy Stentz

Mr. Anthony Rosciti

Mr. Bruce A. Rosen

Mrs. Trudy Rosen

Ms. Bernice Rosenberger

Michael and Leslie Ross

Ms. Lynne Roth

Mr. Elliot B. Rothstein

The Rup Family Charitable Fund

Mr. Alois Rupp

Joan Ryan

Mr. Raj Sadaranganey

Miss Lisa Sahakian

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Mr. David Saltzman

Samuel Weinstein Family Foundation

Ms. Andra Sanders

Sanofi Foundation of North America

George & Meryl Santopietro

Mr. Matthew Sargent

Ms. Christine Sarkisian

Mrs. Patricia Scales

Mr. Antonino Scappaticci

Mr. Jeffrey Schlegel

Mr. & Mrs. Stephen W. Schmaltz

Mrs. Maureen Schmid

Mr. Richard Schmitt

Mr. Benjamin Schneider

Mr. Robert Schneider

Mr. Paul Schnitz

Mrs. Ellen Schranz

Cynthia Schreiner

Mr. Joseph Schuler

Mrs. Harriet Schumacher

Ms. Cynthia H. Schwab

Mr. James Schwartz

Mr. Roy R. Schwartz

Mr. James Scopa & Ms. Anne Kenner

Mr. & Mrs. Thomas Scorza

Mrs. Karen Seaberg

Mr. John Chris Sebastian

Dr. Rita A. Selke

Mr. & Mrs. Jack Sellwood

Mr. Brian Semcer

Mrs. Christine Semcer

Mr. Nathan Senner

Mr. Norman A. Sensinger Jr.

Mr. Mark Serrano

Mrs. Julia S. Shackleford

Mr. David Shade

Amee Shah

Amit Shah

Bharat and Maya Shah

Mr. Dishant Shah

Umakant & Surekha Shah

Shahabuddin Foundation

Mr. Fred Shatto

Mrs. Deborah Shaw

Mr. Christopher Sherwood

Mr. Bruce Short

Mr. Robin Sickles

Mr. & Mrs. Terry Sieker

Mr. Bob Simon

Mr. & Mrs. Paul S. Simon

Mrs. Carol Sjolund

The Smith Family Charitable Fund

Dr. Andrew Smith

Mrs. Clara M. Smith

Ms. Julie Smith

Ms. Julie B. Smith

Mr. Paul Smith

Mr. Charles Smoldt

F.M. Smoot

Mr. Mitch Snow

Mr. Brad Snowden

James & Susan Snyder

Dr. Christy Soranna

Mr. Richard Souder

Southeastern Charity Horse Show

Sports Tutor

Stable Road Foundation

Steadman Charitable Trust

Ms. Caroline S. Steele

Ms. Barbara Steil

Ms. Marcy Stempler

Ms. Jane Stevens

Stiepel

Ms. Mary E. Stix

Peter & Chrystal Stone

Ms. Melissa Straarup

Mrs. Jill Strauss

Mr. Steven Strauss

Miss Claire Strugnell

Dr. Larry Studt

Dr. Delynn Stults

Mrs. Lynn Sturgis

Mr. Edward A. Susmilch

Mr. Richard J. Sussman

Mr. Andrew Sutherland

Mr. Craig Sutherland

Denise Sutherland

Mr. Armour Swanson

Ms. Janet Sweeney

Mr. Jeff H. Talmadge

Mr. Joseph Tannenbaum

Mr. Robert P. Tardiff

Tareen Dermatology, PA

Ms. Jennifer E. Taylor

Mr. Ronald K. Taylor

Mr. Gerald A. Teel

Terracina Senior Living

Mr. Michael Thiede

Mr. Tyrone N. Thomas

Mr. Arnold Threets

Thrivent Financial for Lutherans

Mr. & Mrs. Richard G. Tilghman

Mr. Thom Timmons

Ms. Margo A. Todd

Ms. Linda M. Tonetti

Mr. Frank Torres

Mrs. Annie Totah

Mr. & Mrs. W. James Tozer Jr.

Mrs. Nancy Trimble

Mr. Gregory Trusivich

Mr. & Mrs. Gregory & Corinna Tucker

Mr. Peter Tuffey

Mrs. Theresa Turner

UK Online Giving Foundation

University of Rhode Island Soccer

Team

The UPS Store #5563

Dr. Diane Van der Woude

Ms. Maria Van Ort

Jan & Lucinda Van Prooyen

Mr. & Mrs. Gregory F. Van Tatenhove

Mr. Sean Varghese

Mr. Andrew P. Vater

Mr. & Mrs. Eugene H. Vaughan

Ms. Linda Viscomi

Mr. Paul S. Vogel & Ms. Beth C. Seidenberg

Mrs. Cristina Wadsworth

Jim & Sharon Walker

Walter J & Joanne Rouleau

Foundation

Mrs. Julie Wang

Mr. John Ward

Mr. Ethan Warren

Mr. Jerald W. Warren

Mr. Martin Waxman

Ms. Elizabeth Weatherford

Ms. Cynthia Weber

Wade & Joan Webster

Mr. Jonathan Weiss

Mrs. Taryn Weiss

Mr. & Mrs. Michael Weissman

Mr. David S. Welch

Ms. Linda Wells

Mr. James West

Mrs. Sarah P. West

Ms. Kathryn J. Westrum

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Mr. Peter M. Wheeler

White Collar Defense & Investigations Group

Mr. Jim White

Mr. Michael Whitman

Mr. Grant Whittlesey

Mr. David Willette

Ms. Delphine Williams

Ms. Shirley Williams

Caroline Williamson

Mrs. Claire Wills

Mr. & Mrs. Nigel and Lida Wilson

Mr. & Mrs. Austin Winsberg

Mrs. Ruth A. Wittenberger

Mr. Edgar Woolard

Worth & Company

Ms. Betsy Wright

Ms. Sahitya Yarlagadda

Ms. Rowena Yeung

Ms. Sally Yocum

Yoshida Family Charitable

Mrs. Cara Younger

THANK YOU TO OUR PARTNERS

Alzheimer’s Association

Michael J Fox Foundation

Neural stem cell institute

pspassociation

Rainwater Charitable Foundation

Rossy PSP Centre at the University Health Network

Unified Parkinson’s Advocacy Council

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BOARD OF DIRECTORS

Members of the Board of Directors of CurePSP accept the major responsibility of implementing the mission of the foundation. Board members are actively involved in continually defining and redefining the mission and participating in strategic planning to review purposes, programs, priorities, funding needs and levels of achievement.

Board members assure that the Board of Directors fulfills the governing responsibilities of the organization. It is responsible for its own operations, including education, training and development of Board members and an annual evaluation of its own performance.

Chair

Andy Maus

Vice-Chair

Amy Branch

Treasurer

Justin Shea

General Counsel

Russell Gardner

Louis Foxwell, CFA

Paul Freeman

Lawrence I. Golbe, MD

Lawrence D. Levien

James G. McClellan, CPA/PFS

Bill McFarland

Ileen McFarland

Margaret Orseth

Alexander Pantelyat, MD

Jack Phillips

Mana Bhatt Sanghvi

Nadine Tatton, PhD

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We’re grateful to have some of the most innovative and committed team members pushing our mission and organization forward.

MEET OUR TEAM

Joined 1990

Lawrence I. Golbe, MD

Chief Clinical Officer

Joined 2015

Jaclyn Zendrian

Senior Director, Events

Joined 2016

Joanna Teters

Manager, Support Programs

Joined 2019

ALISA HANSEN

Senior Manager, Donor Relations

Joined 2016

SABRINA DA ROCHA

Director, Marketing and Communications

Joined 2018

Joined 2019

DENISE FORERO

KELSEY WOODS

Manager, Marketing and Social Media

Manager, Community and Resource

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Joined 2023

Jennifer Brummet, PhD

Associate Director, Scientific Affairs and Partnerships

Joined 2023

RICH SPAIN

Director, Development

Joined 2022

Grace Madover

Coordinator, Events

Joined 2022

OSCAR SULLIVAN

Coordinator, Marketing

Joined 2020

KRISTOPHE DIAZ, PhD

Executive Director and Chief Science Officer

Joined 2021

JESSICA SHURER

Director, Clinical Affairs and Advocacy

Joined 2020

Joined 2020

NANCY Caccappolo

CHRISTINE Cassimatis

Manager, Operations

Manager, Events

MEET OUR TEAM

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resources for patients, families and healthcare professionals

Publications

Library of educational resources available for download or order, including Some Answers booklets, fact sheets and medical wallet cards

Quality of life respite grant

60 hours of professional in-home care

Brain donation assistance program

Reimbursement up to $1,000 for related expenses of brain donation, where tissue is sent to the Mayo Clinic Brain Bank

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CurePSP Centers of Care

Network of 30 medical centers across the U.S. and Canada dedicated to the specialized care of PSP, CBD and MSA

Support groups

Over 15 virtual U.S. and international support groups and a growing network of regional support groups and peer supporters

Educational events

Regularly scheduled webinars and family conferences (archived content is available on our YouTube channel)

Research and clinical trials

Tracking, supporting and sharing updates on current research on PSP, CBD and MSA

curepsp | annual report 2020-2022